Help for people with ME/CFS in and around Stockport




Stockport ME Group Information Line

0345 519 4116

Or email smeg2244@yahoo.co.uk


This is a 24 hour voicemail service. A volunteer will respond to messages left within the next 2 working days. Please be aware that this is a voicemail service only, and that while volunteers regularly check for messages, no volunteer is able to answer a telephone call there and then. Please do leave a message and include your phone number.


The Stockport ME Group have recently changed the phone number. This should be included in your phone provider's contracted minutes and will not be an expensive phone call.


This is an information line number only. Volunteers responsible for dealing with queries will not be permitted to give advice. For Stockport ME Group members, if you have a specific query, numbers on page 2 of HERMES still apply.


Alternatively please email us at smeg2244@yahoo.co.uk with inquiries about membership, meetings and other requests for information. If you prefer a phone call please include within your email your phone number and the best time to reach you.


We are currently exploring the option of changing our phone number to an 0345 number which would be included within your monthly landline or mobile minutes.

Views in and around Stockport

Thanks to Stockport MBC for the images.

The Solidarity Drop-In

(benefits support).


The Solidarity Drop-in which was formerly located in the now closed Sir Joseph Whitworth Centre is now taking place in Disability Stockport's Centre for Independent Living, at 23 High Street, Stockport, SK1 1EG. It is on Mondays from 10 am to 4 pm.


They offer support with completion of applications for Personal Independence Payment and Employment and Support Allowance and information on social security sanctions. They can also help with referrals to the appropriate service in cases where advice, or representation in appeals is required.


High Street is on the route of the free Stockport Metroshuttle bus, service 300.


Anyone who is interested in volunteering to work with Solidarity Drop-in, is very welcome to drop in and chat to their team. They have two roles - reception, and support with forms and referrals. Training by an experienced professional in the field, is available for the latter role.


http://solidaritydropinstockport.webs.com/


Stockport CFS/ME Service


Information regarding Stockport CSF/ME service can be found here


Stockport ME group is on Facebook!


If you are on Facebook come and join the conversation.

Find us on:

https://www.facebook.com/groups/stockportmegroup/

or just search for Stockport ME Group.

You will be able to ask questions and chat with other members of the group.



Hope to see you there!









We have registered Stockport M.E. Group with Amazon Smile and this means if people use Amazon Smile instead of normal Amazon and select us as their charity of choice we get a little money for free whenever you buy stuff on Amazon.


It is pretty easy to register. If you have never used Amazon Smile then you will probably do most of it by clicking this link and then maybe ticking YES and then just remembering to use Amazon Smile rather than Amazon or download the Amazon Smile app and use that instead of the more or less identical Amazon one.


https://smile.amazon.co.uk/ch/1067720-0


The more people who do this the better whether they are SMEG members, friends, family etc. Everything we raise does get re-invested in working with people with ME/CFS and their families in Stockport and the surrounding areas.


If you are already with Smile it is really easy to change your charity to Stockport ME Group. The slightly tricky thing is we wont come up in a search for "Stockport ME Group" either remove the ME or add "M.E." with the full stops and your sorted. Again you can click on the above link to do this.

Forthcoming Meetings


Friday 11th June


Awareness & Embodiment Practices for Nervous System Health – Amy Davies


 

Amy will talk about the importance of nervous system health when experiencing fatigue conditions such as ME and CFS. She will share insight into how we can improve the health and regulation of our nervous system through awareness and embodiment-based practices such as mindfulness and gentle movement.


Amy is a Yoga Teacher, Coach and Mindfulness Meditation facilitator who specialises in supporting individuals experiencing persistent pain and fatigue, alongside those looking to reduce stress and build resilience. Her approach is heavily influenced by somatic movement.


This is a gentle practice that encourages us to focus on how the movement feels, rather than how it looks. Expect friendly and accessible sessions, when working with her. Amy’s approach is practical and informative; she shares both the ‘why’ and the ‘how’. Her aim is to offer tools and techniques to support others in their everyday life. You can find out more over at: https://amydaviesyoga.co.uk/about/

or follow her on Instagram https://www.instagram.com/amydaviesyoga



Friday 9th July



Justine Jackson on aromatherapy for ME/CFS



Justine Jackson is an expert in the field of aromatherapy. She qualified in 2006 and has worked as a clinical aromatherapist for 15 years within a multi-disciplinary team at Bramhall Osteopathic Practice. She is fully accredited and insured and works ‘hands on’ in clinic providing treatments for all ages both male and female. She also designs and blends bespoke aromatherapy products for home / personal use to further aid healing and recovery. She is also a qualified reflexologist and uses this modality within her treatments to further support clients.


Justine will talk about aromatherapy and supporting you during your journey through ME. She will discuss how ‘hands on’ treatments need to be tailored to the individual and how clinical aromatherapists blend the essential oils they use and don’t use preblended oils. Aromatherapists will see how your body responds and will design treatments which are very gentle and encourage the body to heal itself. Justine will explain how aromatherapy isn’t just about the hands-on treatment but is about the essential oils - the power of the plants and the various ways the oils can be used at home to help. She will explain how to use these oils safely and where to buy them. More information about Justine can be found on her Facebook page Balance Complementary Therapies, www.bramhallosteopaths.co.uk or on Instagram @justinejackson.aromas.




As with all the SMEG meetings this is open to everyone (not just SMEG members) so please do join us if you can, it would be lovely to see you. Details for joining the meeting are below. If there is anyone who would like to join us but is not that familiar with Zoom please do get in touch with one of us on the committee and we will do our best to help. Also, do feel free to join just for a short while and say hello. You can also join and not have your picture seen (we can still hear your voice and you can see and hear us) or you can call from your phone if you do not have a computer.


You will be able to login after about 10.30am if you would like to join us for a chat before the actual meeting starts at 11am.



Join Zoom Meeting
https://us02web.zoom.us/j/7771165459?pwd=c0orczZDbExHbzFKTjlkeUR5RndtQT09

Meeting ID: 777 116 5459
Passcode: smeg
One tap mobile
+442030512874,,7771165459#,,,,*071734# United Kingdom
+442034815237,,7771165459#,,,,*071734# United Kingdom

Dial by your location
        +44 203 051 2874 United Kingdom
        +44 203 481 5237 United Kingdom
        +44 203 481 5240 United Kingdom
        +44 131 460 1196 United Kingdom
Meeting ID: 777 116 5459
Passcode: 071734
Find your local number: 
https://us02web.zoom.us/u/kc7FwnyLP1



Group Specialist ME/CFS sessions online via Zoom with a specialist ME/CFS Nurse


We are aiming to run, subject to demand, 6-8 group sessions for up to 10 people with Amanda Cannon who is a ME/CFS nurse with many years of experience providing specialist services to ME/CFS patients. These sessions will take place on an online platform such as Zoom. The sessions are targeted at people who will not need 1-2-1 support and who have not received specialist support for ME/CFS in areas like pacing and rest. Participants might be fairly recently diagnosed or just not have been able to access support however long they have had the condition.


We have long been concerned that about half of Greater Manchester and the surrounding areas do not have access to any specialist services. Even where services do exist there are issues such as year plus waiting lists or the services are not accessible to people who have real difficulty getting out of their house. These sessions are being funded by Stockport ME Group and will be primarily targeted at people who have been diagnosed with ME/CFS but have been given no specialist treatment.


If you or anyone you know might be interested, then please get in touch with Ben Wickens ideally by email at Benwickens55@gmail.co.uk


Due to timings, this is likely to start before the next HERMES newsletter comes out so it will be hard to inform our whole membership. If you do know anyone who this might be suitable for who is not on Facebook, our email list or who does not regularly check our website then please reach out to them. We have not sorted out an exact start date or time for the sessions as this will depend in part on the availability of those interested in attending but, we are looking for it to start sometime between July and September.